Translated from the German by Cooper-Schlüter, H.K.

Its affects are not intangible.In this collection you will find pieces written by the people who have been affected by cystinosis in one way or another. You don't need to have cystinosis to appreciate this collection.

The life experiences of Jessica Jondle's fight to survive and thrive despite having been diagnosed with cystinosis.

Anyone who is bewildered and morally affronted by his or her own pain will do well to follow Dr. Spufford along the painful steps of her austere but joyful pilgrimage.--W.H. Vanstone

Anyone who is bewildered and morally affronted by his or her own pain will do well to follow Dr. Spufford along the painful steps of her austere but joyful pilgrimage.--W.H. Vanstone